Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s unpredictable. It’s lifelong. It’s invisible to many. Rare doesn’t mean small. It means underfunded, misunderstood, and often unseen. Hope is rare. And so is her strength. 💜🦋 #RareDiseaseDay #RettSyndrome #MECP2 #RareButStrong
0:52
Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s unpredictable. It’s lifelong. It’s invisible to many. Rare doesn’t mean small. It means underfunded, misunderstood, and often unseen. Hope is rare. And so is her strength. 💜🦋 #RareDiseaseDay #RettSyndrome #MECP2 #RareButStrong
14K views3 months ago
TikTokhope4hoperettwarrior
Rett Syndrome
0:57
Rett Syndrome
10.9K viewsMar 10, 2025
YouTubeDoctor Sood
RSRT is partnering with Profluent to bring AI to the fight against Rett syndrome. With a $1 million award from us, Profluent will apply AI to design next-gen gene editors that are smaller, smarter, and safer. A big step forward in our mission to cure Rett. 🔗 Read the story and watch the full video: https://reverserett.org/news/articles/profluent-rsrt-ai/ #ReverseRett #RettAI #RettSyndrome | Rett Syndrome Research Trust
1:13
RSRT is partnering with Profluent to bring AI to the fight against Rett syndrome. With a $1 million award from us, Profluent will apply AI to design next-gen gene editors that are smaller, smarter, and safer. A big step forward in our mission to cure Rett. 🔗 Read the story and watch the full video: https://reverserett.org/news/articles/profluent-rsrt-ai/ #ReverseRett #RettAI #RettSyndrome | Rett Syndrome Research Trust
1.8K views6 months ago
FacebookRett Syndrome Research Trust
If you know what it’s like to celebrate the smallest sounds, you understand. Some of us aren’t just listening… we’re holding history in real time. 💔✨#rettsyndrome #caregiver #specialneedsparent #love #hope | Rett syndrome
0:51
If you know what it’s like to celebrate the smallest sounds, you understand. Some of us aren’t just listening… we’re holding history in real time. 💔✨#rettsyndrome #caregiver #specialneedsparent #love #hope | Rett syndrome
1.7K views3 months ago
FacebookRett syndrome
Rett Syndrome: Hannah's Story #medicalstories #medicalstoriespbs #pbsmedicalstories #rettsyndrome
0:42
Rett Syndrome: Hannah's Story #medicalstories #medicalstoriespbs #pbsmedicalstories #rettsyndrome
17.1K viewsOct 31, 2024
YouTubeMedical Stories
Meet a beautiful mind in action. What you’re seeing is considered extremely rare in Rett syndrome. She’s not “supposed” to be able to do this - yet here is the evidence of what’s really going on inside a Rett mind. #rettsyndrome #specialneedsparent #love #inspire #motivational | Rett syndrome
1:02
Meet a beautiful mind in action. What you’re seeing is considered extremely rare in Rett syndrome. She’s not “supposed” to be able to do this - yet here is the evidence of what’s really going on inside a Rett mind. #rettsyndrome #specialneedsparent #love #inspire #motivational | Rett syndrome
4.6K views4 months ago
FacebookRett syndrome
Understanding Rett Syndrome Research Breakthroughs
0:22
Understanding Rett Syndrome Research Breakthroughs
80 viewsDec 30, 2024
YouTubeTotal Health
1:01
The mysterious disease
58 views8 months ago
YouTubeشاهد وفكر
1:18
One Mutation, Infinite Complexity #RettSyndrome #NeuroScience
15 views2 months ago
YouTubeB As A Butterfly
0:10
Rett syndrome never stops.. on top of her struggles, sleeping seizures, issues with breathing.. now to know her hearts rhythm is another risk of sudden death… how is this life?! Just when you think you are getting through grieving, another stone gets thrown. (Long QT) 🫀 #rettsyndrome #longqt #grief #heartbroken #momlife
1.8K views4 months ago
TikTokjays.rett.journey
0:13
Magnolia’s Guide to Adventuring | Cross-Country Skiing Teaser | Rett Syndrome
38.9K viewsJan 13, 2025
YouTubeRett Revealed—Rett Syndrome Stories & Supp…
0:59
WHAT is Rett syndrome explanation 1 #rettsyndrome #cureretts #spredthelove #dontbethetoad #Strongertogether
25.6K viewsDec 16, 2019
TikToklauralandram
1:24
Rett Syndrome therapy
19.1K viewsNov 14, 2017
YouTubeTerri Vejrosta
0:59
Selma's Courage: Overcoming Rett Syndrome Challenges
11.8K views3 months ago
TikTokyasmin__shine
2:09
Integracja sensoryczna - Maja Rachwalska - Zespół Retta - rettsyndrome
4.2K viewsFeb 7, 2017
YouTubeMaja Rachwalska - Zespół Retta
0:20
Understanding Rett Syndrome in Girls
3.2K views5 months ago
TikTokrettwarrior
3:01
We can’t afford this! How do people do this? Prescriptions over $37k a month! #rettsyndrome
1.1K views1 month ago
YouTubeCoffee with Nancy
2:06
Understanding Rett Syndrome - A Genetic Disorder, Signs, Prevention Tips & Ayurvedic Support to Kids
416 views8 months ago
YouTubePlanet Ayurveda
0:15
Understanding Rett Syndrome and Autism in TikTok Physiotherapy Videos
1.3M viewsFeb 13, 2024
TikTokdananumberone
0:11
Understanding Rett Syndrome: A Personal Perspective
407.1K views3 months ago
TikTokbecky.malee
0:50
#rettsyndrome #rettsyndromesucks #rettsyndromewarrior #rettsyndromeawarness
42.2K viewsSep 6, 2024
TikTokfollowkink
0:37
Just because a body can’t respond doesn’t mean a mind can’t be brilliant. Assessments like the IQ or Vineland give a snapshot - but for children with Rett, that snapshot is often incomplete or misleading. A genetic result (MECP2) explains a cause; it doesn’t measure potential, awareness, or inner life. What’s locked their voice doesn’t mean they’re locked. Let’s demand better tools, better assumptions, and more patience. They deserve that. #rettsyndrome #hidden #hervoice #fyp #neurodiversity #lo
6.8K views8 months ago
FacebookRett syndrome
0:26
Rett Syndrome Is 6x More Common Than We Thought #generationhope
164 views6 months ago
YouTubeGENEration Hope
0:15
#tiktok #rettsyndrome #rettsyndromebrokemyheart #rettsyndromewarrior #Stiff #epilepsy #seizures #poorthing #hyperventilating #breathingissues #nonverbal #ucdavis #help #kinsley #donate #cashapp
257.2K viewsJan 23, 2025
TikTokdreezymarie
0:46
Rett syndrome hand movements
8.5K viewsAug 21, 2013
YouTubeAshley Rowe
0:25
Understanding Rett Syndrome Humor
16K views3 months ago
TikTokyasmin__shine
0:56
A frustrating reality, I sometimes dream... #raredisease #rettsyndrome
611 views8 months ago
YouTube예람 공주
0:58
Rett syndrome dance therapy | Des rangila | vishakha verma #rettsyndrome
49K viewsAug 15, 2024
YouTubeVishakha Verma
0:18
Magnolia’s Guide to Adventuring | Downhill Skiing Teaser | Rett Syndrome
28K viewsJan 13, 2025
YouTubeRett Revealed—Rett Syndrome Stories & Supp…
2:56
#rettsyndrome #rettsyndromeawarness #rettsyndromebrokemyheart #foryou #viral
148.9K viewsSep 12, 2024
TikTokspecialbooksby_specialk0
See more
Static thumbnail place holder